11/13/2023 0 Comments Post epidural headacheShowing marked tonsillar descent and enhancement around the brain. Waited with her until the results could be interpreted. Her directly from his office to a nearby hospital for an MRI with contrast, and Her surprise, he told her he suspected exactly what she had been suspecting allĪlong: that she might have a spinal CSF leak. Her history, the doctor she was consulting with didn’t laugh at all. So Nicole was surprised when, after giving This time, she tried to be a “good patient,” and did notĪrrive with bundles of papers documenting her symptoms, or theories that might She managed to find a medical practice that focused on spinal pain, and she set Pain, and the way she was being treated by the doctors she saw, contributed toĪ feeling of depression and hopelessness. Point, Nicole was fully confined to bed and had moved in with her parents. Was watching herself from outside herself, like she was separated from reality. Started to go, she couldn’t hear, and she had the curious sensation that she Immediately upon taking the medication, Nicole felt worse. Migraine medication-medication which, unbeknownst to her, also lowered CSF You don’t need any scans.’ ” He sent her off with He said, ‘You need to stop going on the internet and googling Might be caused by a spinal CSF leak, Nicole says, “That doctor looked at meĪnd laughed. She shared this theory with her doctor, that her headaches and other symptoms Said when he laid his head down, his headache went away-just like her. Who had a spinal CSF leak, and the most intriguing detail to her was that he She also had a theory: she’d come across a story about a man Pages of documentation about everything that had been happening to her since So when she went to the neurologist, she went armed with two In addition to this, she also tracked and did research on Even while incapacitated, she managed to work full-time from Like many spinal CSF leak patients, is normally indefatigable, high-achieving,Īnd laser-focused. Only able to be upright for a few minutes at a time. She found it difficult to hear, and her vision became blurry. She started to lose her sense of smell, her sense Issue that should resolve in time without intervention. She sought help with the headaches from her primary care physicianĪnd obstetrician, but they still considered these headaches to be a postpartum Therapy for her SI joint, she realized the headaches were much worse when she To go on bed rest, and that’s when she noticed that her headaches improved-notįrom the drugs, but from laying down. She was given medication for the SI join pain, but she was also told Her with a sacroiliac joint issue, which they also attributed to her recent Laundry, to the point that she had to go to the ER. SheĮxperienced sudden excruciating pain in her hips one day as she was doing January, an inadvertent injury gave her some paradoxical relief. I couldn’t hold the baby, I needed help to do I went to bed and didn’t wake up till the next day. Nicole remembers sitting with herįamily for dinner that night and realizing that she was having a hard time Year’s Eve, things had become unbearable.
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